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Advance Health Care Directive: What's Important to You

An "advance health care directive" lets your physician, family and friends know your health care preferences, including the types of special treatment you want or don't want at the end of life, your desire for diagnostic testing, surgical procedures, cardiopulmonary resuscitation and organ donation.

By considering your options early, you can ensure the quality of life that is important to you and avoid having your family "guess" your wishes or having to make critical medical care decisions for you under stress or in emotional turmoil.

ADVANCE HEALTH CARE DIRECTIVE CHECKLIST

The material prepared for this checklist is intended as informational only and not as legal advice. "If you are unsure of your options or have questions, we suggest that you talk with your physician, your lawyer and other trusted advisors."

  • GATHER INFORMATION FOR DECISION-MAKING. Your physician is a good place to start for understanding your options on health care treatment at the end of life. In addition, many organizations have information that may be useful.
  • DISCUSS YOUR END-OF-LIFE DECISIONS WITH KEY PEOPLE. Talk about your decisions with your family, physician and others who are close to you. Some questions to consider for discussion:
    • What is important to you when you are dying?
    • Are there specific medical treatments you especially want or do not want?
    • When you are dying, do you want to be in a nursing home, hospital or at home?
    • What are the options in Palliative Care/Pain Management and Hospice Care?
  • PREPARE YOUR ADVANCE CARE DIRECTIVE FORM. Under state law, you have a legal right to express your health care wishes and to have them considered in situations when you are unable to make these decisions yourself. California consolidated various earlier forms used to indicate health care preferences into one Advance Care Directive. All valid health care directives executed before July 1, 2000 can remain in effect under California Probate Code section 4701. Earlier forms included Natural Death Act Declaration, Directive to Physicians and Durable Power of Attorney for Health Care.

A wide array of resources are available on advance health care directives, including FAQs provided by health and hospice care providers.

  • DESIGNATE PERSON TO CARRY OUT WISHES. Select who should handle your health care choices and discuss the matter with them. You could name a spouse, relative or other agent.
  • INFORM KEY PEOPLE OF YOUR PREFERENCES. Notify your doctor, family and close friends about your end-of-life preferences. Keep a copy of your signed and completed advance health care directive safe and accessible. This will help ensure that your wishes will be known at the critical time and carried out. Give a copy of your form to:
    • The person you appoint as your agent and any alternate designated agents
    • Your physician
    • Your health care providers
    • The health care institution that is providing your care
    • Family members
    • Other responsible person who is likely to be called if there is a medical emergency

RESOURCES

Note: This listing is intended as a starting point and provided for informational purposes only. There are many other resources available that you may wish to research. Listing here is not an endorsement of the organization or its web page content. If you have questions, please consult with your physician, lawyer, accountant or other appropriate person.


Consumers
Palliative Care/Pain Management

 

Being in pain at the end of life can be more terrifying than death itself. Modern health care focuses attention on this concern through pain management and palliative care.

In California, all hospitals and nursing homes are required to assess a patient's pain condition as a fifth vital sign - along with the patient's pulse, temperature, respiration and blood pressure. California also is taking a leading role by requiring all medical schools in the state to train physicians on pain management and end-of-life care.

Palliative care is given to patients who face serious illness for which there is not a cure. Often called "hospice-type care," palliative care seeks to make the patient's life as comfortable as possible by controlling pain and symptoms, by easing the patient's concerns over daily living needs, and by helping the patient and family address psychological and spiritual needs. Respect for the patient's culture, beliefs and values are essential components of palliative care.

Ensuring Good Pain Management

  • Since different types of illnesses will require different approaches, ask your doctor how he/she will manage pain that can result from your illness. Your doctor should see that you have access to appropriate pain specialists.
  • Consider how much pain you may be able to endure in exchange for other quality-of-life factors such as alertness and physical ability.
  • Easing your pain is a priority so let your caregivers know when you are experiencing pain.
  • Be as specific and thorough as possible in describing your pain. Alert your doctor when you are unable to do specific things and when the pain is better or worse. Consider indicating your pain using a scale of 1 to 10.
  • Once you create a personal pain management plan, be sure to use it to avoid physical discomfort.

RESOURCES

Note: This listing is intended as a starting point and provided for informational purposes only. There are many other resources available that you may wish to research. Listing here is not an endorsement of the organization or its web page content. If you have questions, please consult with your physician, lawyer, accountant or other appropriate person.


 Hospice Care

image of family gathering around an elder in bed

Hospice care is designed to comfort and support patients and their families when the patient can no longer benefit from cure-oriented medical treatment. The typical hospice patient has a life expectancy of six months or less. While hospice often is understood to be a "place to go when you are dying," it more typically allows a dying patient to receive care at home surrounded by family and friends.

Hospice services are provided by a team of trained professionals - physicians, nurses, counselors, therapists, social workers, aides and volunteers -- who provide medical care and support services not only to the patient, but to the patient's family and loved ones. The care addresses the emotional, social and spiritual impact of the disease on the patient and the patient's family.

As the primary health insurer for people age 65 and older, the Medicare program in the Social Security Administration offers certain hospice benefits for end-of-life care. Check with the federal Social Security Administration and your health insurance plan.

RESOURCES

Note: This listing is intended as a starting point and provided for informational purposes only. There are many other resources available that you may wish to research. Listing here is not an endorsement of the organization or its web page content. If you have questions, please consult with your physician, lawyer, accountant or other appropriate person.

 


Your Important Papers, What to Keep and Where
by Marsha Goetting, PhD, CFP®, CFCS, Professor and MSU Extension Family Economics Specialist

The beginning of each new stage or change in your life calls for a fresh look at the types of records and papers you should be keeping. Whether you are a student, married, divorced, widowed, or setting up your first apartment or house, new roles and responsibilities call for new ways of thinking about keeping personal records.

Households should be viewed as mini-businesses since many of the functions of planning, purchasing and record keeping are the same as they are for any other type of business, large or small. You will find financial records becoming a vital part of your life. They are a key to your credit standing, are essential to help you save money on taxes, and provide a continuing indication of your financial progress.

A systematic plan for keeping track of important papers which come into your home can save hours of anxious searching, can help preserve peace and harmony and make it easier to cope with emergency situations.

Record-keeping, however, is more than merely a matter of neatness and order. Legal and safety factors enter in as well. Many records and papers can be kept in a home file for ready access, while others should be left with your attorney or placed in a safe-deposit box. A good rule to follow is to keep the item at home unless it is a legal document or is difficult to replace or duplicate. Then it should be kept in a safe-deposit box or possibly left with your attorney.

Plan and evaluate the need for storage of all papers to determine which should be discarded and which should be stored and where. Make the decision and file each paper accordingly. Do not just stack papers and plan to return to them later. This is the way things become lost and cause you to waste valuable time in searching for or replacing them.

A home filing system with a space provided for the important things is the key to managing the mass of family papers. Items to be kept at home do not call for fancy filing cabinets or for special "offices." A "business corner" can be set up in any room in the house. A cardboard drawer or metal box can serve adequately for storage of bills and family papers. Filing systems must be planned to meet your needs. You may not need detailed files at the present time. But remember, every type of important paper should be assigned a certain space and kept there until needed.

The following guide to record-keeping will help you work out a personalized and efficient system for preserving and safeguarding important family papers. Moreover, it will provide a handy reference for deciding what items to keep, why you need to keep them, how long to keep them and where they should be kept.

You will note that duplicate copies of many family papers should be kept at home for immediate reference. Important reasons for storing some family papers at certain locations are explained beside each category. However, you must make the final decision about where you will store your documents.

Records to Keep at Home

Most records discussed here should be kept for long periods of time. Before you decide to toss any out, 

look them over carefully to see if any are permanent or semi-permanent records.

What to Keep Why and How to Keep

FAMILY RECORDS

Education & employment-- List education and job experiences. Evidences of qualifications for certain work, reliability and tenure. Keep to determine retirement benefits.

Family advisors-- List of names, addresses and telephone number of each. Ready reference when medical, legal, etc.) need arises.

Insurance Policies-- List information for each policy. Review yearly.

  •  Automobile-- Reference for coverage. Keep until car sold or policy expires.
  •  Personal liability-- Reference for coverage. Keep until policy expires.
  •  Property-- Reference for coverage. Keep until property sold or policy expires.
  •  Life-- Reference for coverage. Keep until policy expires or is redeemed.
  •  Health-- Reference for coverage. Keep until policy expires.

Health records Physicians' names and addresses who have record of each family member.

Licenses to practice-- Usually displayed. Keep copy in a safe place.

PROPERTY RECORDS

  • Automobile-- Certificate of title and bills of sale. Keep until you dispose of car. Essential for transfer to new owner when car is sold.
  • Guarantees and warranties-- For proof of date of purchase; to determine service and parts guaranteed. Keep until no longer valid.
  • Household inventories-- Keep list up-to-date as you dispose of or add household items. Record item, cost and date of purchase or sale. For insurance claims to establish values; net worth statements. Pictures of items very helpful when making claims. Make a copy also for safe-deposit box.
  • Instruction books-- For reference on use and care. Keep until sold or discarded.

FINANCIAL RECORDS

  • Account books-- Record of income and expenditures. For reference and comparison. Useful to determine net worth.
  • Bank statement --As documents of proof for income tax.
  • Canceled checks Sort them and save those needed for income tax deductions; proof of important payments. Keep checks for tax purposes at least five years.
  • Credit cards --Keep a list of names and addresses of issuing company, plus card number, if any. In case of loss or theft notify nearest office of company immediately by telephone or telegraph. Give your name, address, number of card, where and when you think it was lost or stolen--and whether you reported loss to police. Follow up with a letter giving same information.
  • Home improvement records --Retain all records for at least 3 years after report of sale of house is made on tax return.
  • Receipts and receipted bills-- Proof of payment. For charge accounts until that are tax deductible. May also be useful in filing insurance claims to prove value.
  • Safe-deposit box item list-- Revise list annually. For the information of family members.
  • Savings-- Pass books or statements. List of accounts and numbers should be in safe-deposit box.
  • Tax returns-- Keep copies of every federal, state and local tax return. Keep vouchers and accompanying papers accessible for at least five years.

LEGAL RECORDS

Living will-- Copy at home. Also with medical records.

Will (copy)-- Unsigned copy for home reference should questions arise.

Durable power of attorney-- Gives others the power to make health care or business decisions when you are no longer able to make decisions on your own.

Permanent and Semi-Permanent Records

Keep in a safe deposit box, with a list of contents of box in file at home.

What to Keep Why and How to Keep (Keep indefinitely unless otherwise noted.)

FAMILY RECORDS Keep a copy of inventory of important family records also in home file.

  • Adoption paper(s) and A copy may be kept at home. To prove ages to start to school; for obtaining birth certificates some jobs; to obtain driver's license; for marriage license; for registering to vote; to qualify for Social Security benefits; to obtain passports; to determine estate heirs.
  • Church-- Baptismal and confirmation certificates. Acceptable evidence of birth date when obtaining a delayed birth certificate. Copies may be kept in home files.
  • Citizenship-- To obtain certain types of jobs; to obtain passports; prove eligibility to vote.
  • Copyrights and patents-- Proof of ownership rights.
  • Death certificates-- Proof of death for social security benefits, estate settlement.
  • Divorce decree-- To clear legal requirements for remarriage.
  • Employment record-- To obtain retirement and other job benefits. Proof of spouse earnings may be necessary for estate tax saving.
  • List of insurance policies-- List of policy numbers, name of each insured, beneficiary, company, agent. Reference for kinds and amounts of coverage. Keep until collected or expires. Records of payments and premiums. Location of policy. Record of claims. Duplicate policies can be obtained. Policies should be kept in home file.
  • Marriage records-- For proof of marriage to collect insurance. To collect social security. To settle estate, veteran's federal benefit pension compensations.
  • Military records-- Order to active and inactive duty, commissions, medical treatment or disability, papers connected with claims for benefit. Some authorities recommend that discharge certificates be recorded by county or city clerk to create additional official record in case the original is lost. Include all documents connected with the G.I. Bill for education. Necessary to qualify for veteran's benefits.
  • Passport-- Required for most travel outside the country. Hold on to your expired passport, which could be used to satisfy some application requirements for a new one.
  • Social Security card-- Keep copy of card or number from card. Will be needed when you apply for benefits.
  • Wills (copy)-- Copy may be kept in box for reference. Essential for settlement of estate. Original can be kept with attorney or clerk of court.

PROPERTY RECORDS

  • Abstract for real estate-- Keep until property is sold. To prove clear title.
  • Automobile title, bill of sale-- Proof of ownership.
  • Burial lot deed-- Note on it the number of plots. Proof of ownership.
  • Deeds and mortgages-- Include title policy; property insurance policy; mortgage; receipts for payments on mortgage. Keep records of improvement to compute capital gains or losses. Record day, month and year you acquire or sell property; gross sale price; depreciation; legal fees and expense of sale. For income tax and estate tax purposes.

FINANCIAL RECORDS

  • Contracts, notes, debts-- Includes promissory notes, mortgages, installment contracts, liens, and chattels either collectable or payable and evidence of status for estate settlement.
  • Government bonds-- Keep written record at home of issuing date; complete serial number; denomination; co-owner, if any; and after redemption amount received. Needed for (1) income tax; (2) for gift tax report 
    if you give it away; (3) for ease of replacement in case of loss; (4) for ease of settlement of your estate.
  • Household inventory-- A description of article, date purchased and purchase price. Keep up to date as you dispose of or add new items.
  • Investments-- List of saving accounts, location and numbers. Keep a list in safe-deposit box and at home of stocks, bonds and real estate investments, together with all pertinent details. May leave stocks, bonds or other securities with broker. Needed for evaluation of estate and income tax.
  • Pension and profit sharing-- Records should note dates and amount of employer and employee contributions plans and payments and benefits received or payable.
     

Papers To Carry With You (Make a list of these for your home file)

Item and Suggested Uses:

Credit cards: Identification. To charge purchases.

Driver's license: Identification and evidence of legal eligibility to drive.

Uniform donor card: To donate body organs. To donate body to medical school or training program for use in medical education or research.

Identifications:

Blood type: Emergency treatment. Place note in household files for ready reference in case of loss.

Diabetic: Emergency treatment.

Epileptic: Emergency treatment.

Medicare or insurance card: For identification to receive benefits when admitted to hospital.

Personal ID: Name, address and telephone for yourself and of person or persons to be notified in case of emergency.

Doctor preferred: Name, address and telephone numbers in case of need of emergency treatment.

Organization membership: Identification and proof of membership.

Social Security card: Identification. Number should be listed among papers at home together with address of national headquarters, in case you need to make inquiry about status of account or card is lost. Keep a copy of card in safe-deposit box.

 

 

 

In The News
Feeling tired all the time?  You’re not alone.  In fact, fatigue is one of the most common complaints that bring adults to doctors’ offices. Numerous studies indicate that people who see their doctor about fatigue have generally experienced it for a considerable length of time — anywhere from six months to several years!

Fatigue can be due to numerous causes, such as medical conditions like congestive heart failure, hypothyroidism or diabetes. It can also be a result of sleep disturbances brought on by menopause, or by physical changes that accompany aging. But while fatigue may be an inescapable part of life, there’s no need to take it lying down. Your body is geared toward generating energy as well as expending it. And there are numerous strategies to help regain the physical and mental energy needed to enjoy life to its fullest.

Eat for energy

The tried-and-true advice for healthful eating also applies to keeping your energy level high:

• Eat a balanced diet that includes a variety of carbohydrates, proteins, and fats with an emphasis on vegetables, whole grains, and healthy oils. Taking a daily multivitamin will ensure that you get the vitamins and minerals you need, but taking extra amounts of individual nutrients won’t give you more energy.

• Eating certain types of foods in particular amounts can help prevent fatigue. Because different kinds of foods are converted to energy at different rates, some — such as candy and other simple sugars — can give you a quick lift, while others — such as whole grains and healthy unsaturated fats — supply the reserves you’ll need to draw on throughout the day.

• Eat small, frequent meals. Where energy is the issue, it’s better to eat small meals and snacks every few hours than three large meals a day. This approach can reduce your perception of fatigue because your brain, which has very few energy reserves of its own, needs a steady supply.

Reduce stress

The most common cause of persistent fatigue is stress and the emotional response to it. People who feel fatigued most of the time don’t necessarily have more stress in their lives than other people, but they may be more sensitive to its effects. Stress-induced emotions consume huge amounts of energy. Relaxation therapy can be an effective tool for reducing stress and naturally boosting your energy, particularly when used in combination with cognitive behavioral therapy. Meditation, self-hypnosis, yoga, and tai chi are all relaxation techniques. One of the easiest techniques to use is progressive muscle relaxation, which involves systematically tightening and releasing sets of muscles, beginning with your toes and progressing up your legs, torso, hands, and arms. You might also consider other relaxation therapies, including aromatherapy and massage.

No matter what age you are, there are things that you can do to feel more energetic. Harvard Health Publications’ Boosting Your Energy report will help you take the first steps toward discovering the causes of your fatigue. This Special Health Report provides you with the latest information about fatigue and offers strategies to help you regain your physical and mental energy. The report discusses medical conditions that may be the cause of your fatigue as well as ways to naturally boost your energy.

Reprinted from Boosting Your Energy — A Special Health Report from Harvard Medical School, Copyright © 2007 by the President and Fellows of Harvard College. All rights reserved.

 
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Last Modified : 06/17/08 03:51 PM